Hi! I also have vestibular migraines. Did you do all the fun vertigo tests? Do you have vestibular rehab anywhere near you? It's mainly just a bunch of balance exercises. There are medications that work to suppress the vestibular system but they should not be taken long term. Retraining your brain is the best answer. I still get vertigo, but the symptoms aren't as bad.

Please disregard if I'm being too intrusive: did you see an ear nose and throat specialist? Did you have the VNG and then MRI or CT? Getting to the bottom of exactly why you have vertigo or constant movement is important. Don't let anyone dismiss it. I let a doctor tell me it was because I had low blood pressure and took too many medications once. I ended up at a different ENT years later that explained everything and was able to tell me that it wasn't my blood pressure or medications. It was actually a nerve in my ear that is inflamed. He prescribed Valium for a short time to give me some relief until I started physical therapy.

I would love to try to volunteer, but I don't have a passport, or enough money to get there. Thank you for the information though.

I'm case you're interested, mayo clinic, MN is doing a vestibular migraine study & looking for volunteers.

can you ask for a small prescription for Valium to see if it helps? I am lucky that I was able to find a gp and an ent that listen to me and know that what is medically fine for one person may be another person's nightmare. As in, things don't always show up on those stupid tests.

Also, with vestibular migraines it could be sinus related or aggravated. When the weather changes is when mine gets worse. I have found that using a sinus rinse and/or a nose spray that reduces swelling helps me. But everyone is different. My ent went into a long explaination on how it is all related and wouldn't show up on any tests.

I hope you find something that works for you soon. Living with constant movement is not fun. I changed the words to sounds of silence to express how much I hated my vertigo to my mom.

@A MyMigraineTeam Member I've seen 2 ENT's, 3 neurologists, nerve induction tests, had 2 MRI's, 4 CT's 2 VNG's, 4 hearing tests, and lots of blood work. Always being told there is nothing medically wrong with my ears. I did try vestibular therapy, but I had to quit because I ran out of money. I was doing the vestibular exercises after I stopped going for the therapy to see if it would help, no help.This has been all in 6 years. I finally got diagnosed by a neurologist with the Movement Disorder Program. He put me on Topiramate, but I haven't been able to take it. I did try for almost 2 months. I am now waiting for them to get hold of me for another appointment to see him.

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