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How Do You Deal With People Who Do Not Understand Migraines?Any Advice?

How Do You Deal With People Who Do Not Understand Migraines?Any Advice?

I am dealing with one person who does not get migraines and she does not understand the help I need, the activities I can not do when I have one, how sluggish I feel after it and that I can not give it my all when I have a migraine etc. How do you get your needs met but not be rude to the people who do not understand?What helps them to understand , listen to you, or be more willing to help you?Really struggling with these type of… read more

A MyMigraineTeam Member said:

Its actually pretty hard unless they can somehow relate. The best advice I can give you is maybe you need more friends like you. Search online migraine… read more

posted about 11 hours ago

Migraines Causing Pain Down Anyones Neck Shoulder And Arm?

Migraines Causing Pain Down Anyones Neck Shoulder And Arm?

I have been in PT for almost 3 months for my right arm/ neck/ shoulder pain that happens after bad migraines. It had just gone away after 2.5 months of PT this week i was supposed to graduate after taking a week off to see if i could keep up with exercises on my own and then i had a migraine 2 nights in a row and pain is back. As well as the exhaustion that goes with pain. Does anyone else get the nerve pain with migraines. Its fairly new for me and very… read more

A MyMigraineTeam Member said:

It is true that if you keep doing your PT exercises that you learned that you will continue to improve. I've been doing PT exercises on and off since I… read more

posted 15 days ago

Has Anyone Tried The Migraine Infusions?

Has Anyone Tried The Migraine Infusions?

I have had migraines for 10 years. Getting worse 15-20 a month. I have tried Botox, Aimovig, emgality, imitrex, topomax, naratriptan, depeco. Nothing works more than a month. I have been hospitalized several xs because cocktail they give at ER does not work. They gave me DHE infusions thru a central line. One every 8 hours for 4 days. It’s a very strong drug w a lot of side effects. The infusions they are talking about are once every 3 months thru IV. Has anyone tried… read more

A MyMigraineTeam Member said:

No. Lol. I tell my family the migraines are not whats gonna get me, it’s all the side effects from the meds!!!

posted about 18 hours ago

Have Any Of Y’all Taken Keppra?

Have Any Of Y’all Taken Keppra?

My epileptologist prescribed this medicine about a month ago, for seizure-like symptoms and migraine. Started taking it about three weeks ago. Began to have really bad intermittent sleep, though, and bad mood swings. Did help some with the pain, and feelings of deja vu, and blanking out. Just wanted to get an idea of what y’all’s experience with this drug has been like.

Coma With Migraine

Coma With Migraine

Has anyone heard of someone going into a coma from a very very bag migraine?

A MyMigraineTeam Member said:

Hi I havent heard of it but my neurologist did mention it to me when I was 1st diagnosed with hemiplegic migraine that if I didnt mind myself,takes meds… read more

posted 26 days ago

How Long Should A Migraine Last?

How Long Should A Migraine Last?

Hello, I have suffered with migraines for 30 years now. Getting them at the age of 8 is hard enough as it is, but as I grew up the headaches would last longer. about 5 years ago, I got a headache that lasted 8 days. I thought I was going to die, seriously, I think at moments I actually prayed to god saying "I'm not ready to die please don't give me a brain aneurism at 33 years old!!!"
I finally caved and gave in t my husband who was pleading me to go to he hospital. ( I did not… read more

A MyMigraineTeam Member said:

Look in the phone book for Drs, then look under Neurology. Neurology only, I go to the Neurology Institute. They are Neurologists only. I have been… read more

posted about 1 month ago

I've Been Tested For Covid-19 Quarantined Inside

I've Been Tested For Covid-19 Quarantined Inside

My muscles have been sore my body has been aching it's like the inside of my chest near my organs and heart they've been hurting as well to a little nausea but no vomiting constant headaches headaches toothaches been getting plenty of rest and drinking water I can't be dehydrated some of the symptoms from HIV which I know I don't have because I've been tested but only had one intimate partner and I didn't use protection so I don't know if that could be the cause or… read more

Has Anyone Tried Trokendi XR?

Has Anyone Tried Trokendi XR?

I am two months into this prescription, which I know you have to give new medications time, but i am getting back to a point where my migraines are becoming more consistent even though I am still taking this daily. Do yall have any suggestions?

A MyMigraineTeam Member said:

I am taking Gabapentin and it works. My headaches have subsided. Maybe you should try that.

posted about 1 month ago
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