I know it's common for people with epilepsy, but they've ruled out epilepsy and told me it's just a migraine aura. Does anyone else experience this? What usually happens is I get the deja vu in my sleep, wake up with the deja vu (it's really intense) often I have excess saliva or I have nausea and vomiting. Soon after the deja vu I experience severe headache (migraine).
Yep! I get these most of the time too, especially when the weather has been crazy! Everyone goes through different symptoms or different experiences with migraines, but the main thing is we ARE NOT alone!! Much love and hugs to you all!
I don’t know what anyone else’s aura feels like, but for me it’s like out of the blue someone “flips a switch” and I have no idea where I’m at. Except for one time, it’s only when I’m driving. Everything will look vaguely familiar, but roads I’ve driven on thousands of times will no longer be familiar to me. I forget where I am, how to get where I’m going, etc. it usually only lasts about 10-20 min. I have to really focus and concentrate to get “reality” back. The only time it lasted longer was a time I was at work. It lasted 8 hours! I couldn’t remember anyone’s name or how I knew them. Everything looked “off”...cartoonish... and a farther away from me than normal. I frequently have issues with distances even without the other aura. Can anyone else relate?
Not sure if this is strictly relevant to this thread, but I sometimes get a sort of deja vu.
It starts with having a memory of a dream, but I can't remember it properly. It's like chasing an elusive butterfly. Another similar aura is having a memory of an event that has just happened but then becoming unsure if it did happen or not. Eventually, it becomes so frequent that I dont know what is real or not.
From there, I become really ill.
My heart sinks when I realize what is happening because I know I'm in for a rough ride.
Hey DogMom! I completely understand your situation because I’m in the same boat with you! Sometimes we find something that works and we’re estatic! Then the other shoe falls and we are pissed! Never ending cycle. Remember you are not alone here! Prayers and hugs!
I also suffer migraines due to TBIs. My car accidents occurred in 2006 and 2008. I have also had another concussion when I hit my head on the bathroom floor after passing out.
No matter how anyone gets migraines it is one of the worse pain we experience.
My migraines have taken over my life. Throughout the years, it seems I get worse as time goes by.
Now after having Covid in January and the covid vaccine, my migraines have gone on to a new higher level of pain. I never thought they could get worse.
I don't have much faith in doctors. I get different answers from the different doctors I have seen. None have really helped with my migraines. I have had a migraine everyday for over 3 weeks now. I have been doing Botox for a few years now. Botox does not seem to be helping anymore. On my next appointment, I am going to try a pain blocker. I hope this will be helpful. The one thing that helps for me is prednisone. If I do a round of that, I get some relief.
Good luck. If you find anything helpful, please post. I am always looking for others who have suffered a TBI and now have migraines.
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