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Can People Share Their Experiences Of Taking Aimovig?

Can People Share Their Experiences Of Taking Aimovig?

I’m having trouble getting my insurance to cover Emgality and my neuro says that Aimovig might be easier to get through for some reason. However, I’m rather concerned about the severe constipation side effect that has caused some patients to need surgery as that has been an issue I’ve had my whole life. How have you guys combatted that side effect? Any info you think would be useful would be much appreciated! TIA! 😊

A MyMigraineTeam Member said:

@A MyMigraineTeam Member, If I remember correctly, you are a long time migrainure too, right? My neurologist told me that when they run test groups for new meds, they don't bother with those of us who've been having migraines for 40-50 years. So there's no way of telling how long it will take for these new CGRPs to start working on us. He asked me to be committed to the product for at least a year to give it a fair chance to work. He pointed out that he's fighting a lifelong habit of migraines in me. He would be shocked if any medication worked instantly on me. So I agreed to go a full year. He helped me get assistance through the Amgen Foundation so my insurance doesn't pay for the Aimovig which allowed him to get approval for botox through Medicare. So now we're doing a multilayered approach, and now that I'm adding in my new weird bi-nasal occlusion glasses and sclera lenses which seem to all be working together to drop my days of migraine. I compared last August, my worst month, to this year. August 2020 had 28 days of pain whereas this August 2021, I was down to only 20. So far my best month was 15 days, but my average now is around 19. But still, this approach has given me a week free of pain that I haven't had for years. How long have you been on your CGRPs?

edited, originally posted 3 months ago
A MyMigraineTeam Member said:

I take miralax, whole husk psyllium, 1/2 daily dose of citrical, and Magnesium. Takes care of my life long constipation.

posted 3 months ago
A MyMigraineTeam Member said:

Another good product to try is miralax. Just mix it with coffee or water and it is tasteless. Works great!!!

posted 4 months ago
A MyMigraineTeam Member said:

I went through constipation issues with Aimovig along with chest pain, palpitations, and some other side effects. I declined to continue to use Aimovig. However, I have one med I use at intervals that has constipation side effects. My proctologist suggested taking a stool softener in advance. You might also consider Metamucil, etc. You can look at your diet, and see if you need to make any changes to try to combat the constipation issue -- increase fiber, water, etc. These are just my thoughts, and I understand your concerns because the constipation can result in other problems. CKay

posted 4 months ago
A MyMigraineTeam Member said:

Sheryl,
Hi! The new med is called Qulipta, a preventative medication for episodic migraines. CKay

posted 3 months ago
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