When it comes to family and friends and they want to make plans. I tell them that I can't make any promises to keep the plans. I also have Fibromyalgia. Sometimes you just have to say no. If they get upset they will have to get over it. It's your body and you know how you feel. Hope this kinda helps. Just remember that no one is going to take care of us but ourselves. As work... I am on disability. I really don't know what to say about that. Good Luck! 💜
Odds are there is couple things to have proper help and guidance with medicine and exercise
Family & friends & those that truly care about you should research this disease, because that is what it is, a Neurological Disease. You can't expect them to understand what a migraine feels like or how how very disruptive it is to life. But if they truly care you can expect them to be supportive, understanding & be there for you.
No relationships. Very little friends but those I have the migraines, fibro, etc do not really affect them. Family has been supportive but many do not fully understand the full extent of disability. Have canceled many many plans but have been trying to do better about this, in most cases stay with plans even when do not feel well because have found that most times these outings, etc make me put pain on back burner. Had to stop working at 48 because of these issues and the depression, anxiety that comes with the territory.
I have had issues with friends,family, relationships. In a relationship,I tell them I have Migraines and it's fine at first. Then when my Migraines come on,it's like it's an interruption/inconvenience for them. I got to the point where I don't date anymore. As far as friends,they pretty much understand. We have no control over where or when we get Migraines. I wish people would understand that