Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMigraineTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMigraineTeam Member asked a question 💭
Pembroke Dock, UK
May 5, 2024
 · 
Reactions

Answer Summary

Members shared mixed experiences with Topiramate for migraine prevention, with some finding relief for months or even years before it stopped... Read more

Members shared mixed experiences with Topiramate for migraine prevention, with some finding relief for months or even years before it stopped working, while others reported significant side effects including memory problems, confusion, extreme fatigue, tremors, mood changes, and kidney stones that forced them to discontinue use. Several members described troubling cognitive effects like forgetting words, feeling like a zombie, or struggling to remember their own name, with one member falling asleep in a woodshed and another having to stop driving due to impairment. A recurring theme was the difficult trade-off between migraine relief and quality of life, with many members emphasizing the importance of listening to your body, communicating openly with your doctor about side effects, and not being afraid to switch medications when the costs outweigh the benefits.

A MyMigraineTeam Member

Omg. My neurologist prescribed 25mg twice a day at first. 3months later he bumped me up to 25mg 4times a day. At first I thought I was just having an off day but come to find out there's a lawsuit against the makers of Topamax. Wondering why would my neurologist want to put me on that? Long story short I immediately stopped taking it. I would stutter. Forget why I walked into the living room. It was kinda scary. Might be different for each person I just had a horrible experience

May 8, 2024
A MyMigraineTeam Member

I am currently on Topirimate. I take 100 mg in the morning and 150 MG at bedtime. It is to fight pain and migraines. I have not fortunately had any issues with the medication. It has been beneficial for me.

March 18, 2025
A MyMigraineTeam Member

It helps reduce migraines but I could not live with being so dumbed down that I had trouble rembering my name

February 13, 2025
A MyMigraineTeam Member

Topiramate did help my headaches, but made me very depressed. Eventually I got kidney stones. Two things to be on the lookout for.

May 25, 2024
A MyMigraineTeam Member

I am taking a very low dosage of the topiramate at this time

May 19, 2024

Related Questions

View All
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In