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Real members of MyMigraineTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMigraineTeam Member asked a question 💭
Manchester, NH

If so I need help? I have tried Topomax and Acetazolamide. I have really bad side effects from both of them. What else can I try?

December 5, 2025
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A MyMigraineTeam Member

Topamax (aka Dopamax) is very well known for its side effects. I took it initially, and it helped for a while, but couldn't tolerate it. Trokendi XR is supposed to be easier to tolerate, and can be administered in a higher dose. But even that left be drugged to a stupor.

December 5, 2025
MyMigraineTeam

What treatment options are available for idiopathic intracranial hypertension (IIH) when standard medications cause bad side effects?

IIH is a condition where increased pressure inside the skull causes severe headaches and vision problems. Since you've experienced bad side effects from Topamax and Acetazolamide, it's Show Full Answer

What treatment options are available for idiopathic intracranial hypertension (IIH) when standard medications cause bad side effects?

IIH is a condition where increased pressure inside the skull causes severe headaches and vision problems. Since you've experienced bad side effects from Topamax and Acetazolamide, it's really important to discuss alternative approaches with your healthcare provider.

Recent research has shown that GLP-1 receptor agonist medications (like those used for weight loss and diabetes management) may help reduce intracranial pressure in people with IIH. Since weight loss is a primary treatment for IIH, and these medications promote weight loss, they're being studied as a possible treatment option.

Beyond medication, your doctor might recommend:

* Weight loss strategies if applicable, as this is a primary treatment for IIH
* Adjusting dosages of your current medications to minimize side effects
* Monitoring your symptoms closely to evaluate treatment effectiveness

It's essential to work closely with your healthcare provider to find a treatment plan that manages your IIH symptoms without unbearable side effects. They can help determine if newer approaches like GLP-1 medications or other alternatives might be right for your situation.

December 5, 2025

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