Yes, after years of trying medications with my GP, I went to a local neurologist for two years and tried more medications until he ran out of ideas. He sent me to a neurologist at a teaching hospital in a nearby city. I haven't had much luck. I feel like I haven't found the right doctor. Neither one were very communicative. I've learned m ore about migraine from the internet and fellow migrainuers. Thanks for your response. I know it's a lot of trial and error. I'm just running out of steam.
I tried two rounds of botox with no improvement so I didn't go back for a third. Does it take more than two rounds before there is some improvement? My doctor, at the time, didn't encourage me to try another round so I assumed that was it. I wonder if I should try again?
Adding gabapentin (Neurontin) to my meds (beta blocker & tricylic a/d) has made a world of difference. There is some weight gain but I don't mind the trade-off with less intense pain and throbbing. Did have Excedrin in there also but had to stop due to stomach issues.
You name it over the past almost 3 years, I’ve tried many preventative & failed for one reason or another. Topaxmax - Swiss cheese brain, depakote - stomach pain, propranolol - lack of energy to point my boss talked to me about my performance. There are others, I forget.
What worked - Botox and now Aimovig with propranolol as needed when we go out into places with lots of commotion, and if I have a tinge of a headache, I do a dose of timodol eye drops and dexamethasone or advil depending on the degree of the headache. The last combo was trial & error on my part to get what works. Timodol eye drops do work when I have a mild migraine, it is amazing, there was a write in a medical journal, that’s where my neurologist got the idea to try it.
Botox is covered by my insurance 100% - yippee, Aimovig not covered. I used the 2 free doses to get hooked and now use the bridge program to get the med for $0 for up to 1 year while the insurance company decides. This has tremendously cut my headache days and chopped the “tops” of the migraines that I do get. Maybe once a month I get a knock down migraine requiring the full combo of dexamethasone, timodol, and Maxalt.
I have rizotriptan and a anti-sickness to go with it I also have topamax which I take 25mg twice a day which works unless I work out or I'm too hot or too stressed or I have been having to keep bending over like at work all the pressure builds in my head then and I have to take paracetamol and ibuprofen to help settle it off.