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Intractable Migraines- Any Ideas On How To Stop Them?

Intractable Migraines- Any Ideas On How To Stop Them?

I get lots of intractable migraines that last longer that 48-72 hours & don't respond to standard treatment (also called status migrainosus). I would love to know if any of you have ideas on how to treat them?

To complicate things further I can't take ergots or triptans because of severe side effects to these medications in the past. My "go-to" medicine for this is a steroid taper (was 4mg methylprednisolone taper pack but eventually that stopped helping & the dr upped the dose to a 20mg predniread more

posted September 23, 2017
A MyMigraineTeam Member

@A MyMigraineTeam Member
I completely understand & am so sorry you're suffering so.
Menopause did not stop them for me. I failed every preventative & most Abortives.
I find the best treatment is to hit it from all sides.
I use a few different blends of essential oils so I don't develop a sensitivity. For example Peppermint, frankincense & Tumeric in a carrier oil & put in a ROLLERBALL. Apply to Temples, forehead & back of neck as needed.
I see an acupuncturist every week. He puts in temporary tacks in my ears for PTSD, pain & mood. I asked him to take my @ daith If he could find the exact pressure point. I went to a piercer with tacks in & told him "exactly right there". I have gone from 6 migraines a week down to 7 in 4 months.
My migraines are complex cluster & hemipalegic.
You could try CBD oil. It's helpful for me at about 60mg. Some need less, some more.
I also use the calm app for @ meditation. Last but not least an IceKap. Great product! Goog luck & best wishes
To you!

posted October 1, 2017 (edited)
A MyMigraineTeam Member

I have similar migraines and connot take any medication as I vomit immediately...I have found and Alternative solution that has been a miracle for me. When I feel a migraine coming on I lay down close my eyes and listen to binaural beats.
https://www.youtube.com/watch?v=s4JafbX3WQg&amp...
Using headphones and I really focus on the sounds. it puts me into a sort of trance and when I am done the pain is so much less and often does not develop into a migraine.
I was skeptical at first but willing to try anything... it is also great as you can do it anywhere, I have even hidden at work and done it to help relieve the pain.

posted November 7, 2017
A MyMigraineTeam Member

Talk to Dr about flexerial

posted September 27, 2017
A MyMigraineTeam Member

I have found that the 4mg prednisone taper is not helpful in breaking the intractable migraine cycle. I have however bern amazed that my longest span of being migraine free or very low, was as I was being treated for poison sumac rash or other inflammatory reaction. I was put on a beginning dose of 80 or 60 mg and tapered down. It seemed that by the time I got to 40 - 20mg the side benefit, was in breaking the cycle. Also noticed when I was treated for a bone fracture with a short addition of Percocet, again I was blessed with low or no migraine pain days. Perhaps If used carefully, briefly adding something under a doctor's care, could be useful to break the exhaustive cycle.

posted September 24, 2017
A MyMigraineTeam Member

Thanks for the suggestion - unfortunately I react to hormones with worse migraines. Already tried working with ob-gyns over the years as well as this year. Tried many different types of hormone treatments and all of them have made things worse:( She also suggested doing a hysterectomy, but the stats show that 2/3 of migraineurs who go into "forced menopause" through hysterectomy versus "natural menopause" get worse migraines, so I decided that wasn't worth the risk. I'm having a rough day right now because it's day 3 of a migraine, but it's going to get better - always hopeful, lol!!! Hope your day is good??

posted September 23, 2017 (edited)

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