How do you cope with being in pain 24/7?

How do you cope with being in pain 24/7?

I need help to deal with my condition.I don't mean with medicines,I mean how to deal with it emotionally and how to cope with it everyday.Do you see therapists,councillors,have treatments,go to group meetings?I need to find a way of managing my feelings of anger,depression,loneliness etc in a healthy way.I can't go on like this where I'll end up bringing everyone down with me.

A MyMigraineTeam Member said:

I know this feeling well. I have no answer. I get mad at the neuro I’ve been going to for 6 years -cannot seem to get it through THICK, OVEREDUCATED SKULL~ that I don’t HAVE episodes... same one for six years. Don’t give me the stupid calendars to fill out,, i’m Just gonna wait until the day before and mark 9.5,9.5,9.5, in everyday-never 10 because we all know never to go to the ER.
I’m sorry , hun- but I feel you.

posted almost 2 years ago
A MyMigraineTeam Member said:

@A MyMigraineTeam Member ~ This is a great group, everyone knows what you are going through and there are some great tips and suggestion, take what works for you.
it's important to form your own support system, family and friends, a therapist, a PCP that truly understands your migraines. If your family and friends don't understand, educate them as much as you can. I have known my best friend for over 40 years and just recently spoke with her in depth about my migraines. She had no idea that I suffered as much as I do.
These things won't make your migraines better, but it will help you cope.

posted almost 2 years ago
A MyMigraineTeam Member said:

This group helps me a lot because on the whole people don't understand unless the suffer them selfs

posted almost 2 years ago
A MyMigraineTeam Member said:

Hi Hanna - I understand what you are going through, so sorry you are experiencing all of these awful things. I've had intense migraines for 51 years, with small periods of relief here and there. Through it all, I've been fortunate to have a supportive family and a few friends who get it. Counselling has helped me, if only to rule out somatoform migraines, and provide me with a safe place to vent. It also helps me to keep up to date with research, new medications and treatments. You must become your own migraine expert, a feeling of control is crucial to perseverance. Doctors really don't get much education on migraines in medical school. You must be the expert in every room and never give up on managing your own health. Hope this helps a bit. Hugs ❤

posted almost 2 years ago
A MyMigraineTeam Member said:

I have had migraines and other things for over 35 years and still don't know how to deal with them the right way. I have lost all of my friends now. Most of my family doesn't even believe me except for my mom. It's very lonely

posted 7 months ago
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