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A MyMigraineTeam Member asked a question 💭
Redford, MI
October 25, 2017
 · 
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A MyMigraineTeam Member

Yes just had spinal tap for migraines and yes high flo O2 4-5L does help.

November 1, 2017
A MyMigraineTeam Member

No, I had an MRI for the migraines and they found a lot of lesions on the brain. However, they also found lescions that were MS lescions. 3 months later another MRI and I had 9 new lesions of MS ( multiple scoliosis ). So to say I was 100% positive for MS they did a spinal tap. I found out I do have MS and its aggressive.
So, I did have the spinal tap but not for my migraines.
With the medicine I take for my MS, the main side affect to it is, HEADACHES. Go figure. They start a lot as a headache that turns into a migraine.
Oh well I know it could always be worse.
😊

November 7, 2017
A MyMigraineTeam Member

And we can’t figure it out because we’re always in a haze and have aphasia, so no help when we say “beacons” when we mean “beakers” 😄

November 24, 2017
A MyMigraineTeam Member

So sorry you've beengoing through so much hugs maybe cause the doctors that try to help us arnt going through it like we are so they can't figure it out:(

November 23, 2017
A MyMigraineTeam Member

Yes+ a tilt table test, spinal fluid test And a hole drilled in my skull to check for any leaks they could see. Nothing. There was a doctor who was frustrated because “ I know what’s causing her pain, but I can’t prove it and if I can’t PROVE it, it “doesn’t happen”. I want someone to give guy grant $
He wouldn’t tell us his theory “because her migraines are like chasing a ghost. If I tell you, first of all it’s theory, second of all I don’t want your family to think one day it will be figured out, that’s false hope....
But I KNOW what’s wrong and i’m Sorry”
Worst
Conversation
Ever

November 23, 2017

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