Trying to find right doctor - Status Migrainosus

Trying to find right doctor - Status Migrainosus

I am on day 152 of a ongoing migraine. All the doctors have said is that it is a status migrainosus. We have done several nerve blocks which have not worked. I continue to do Botox, Aimovig, preventative meds, and abortive meds. Nothing is helping. In the hospital, they did a CT, MRI/MRA/MRV, and a spinal tap. They gave me several different migraine cocktails - none of them worked. They gave me Toradol which I told them I had been given several times and it did not… read more

A MyMigraineTeam Member said:

Yes, it has not been effective with this migraine.

posted 2 months ago
A MyMigraineTeam Member said:

Have you tried CBD? It is NOT cannabis but it should alleviate some of that I would think.

posted 3 months ago
A MyMigraineTeam Member said:

All I can say is : it has helped me to do my own research. Bring what I find that I feel might help and anything I have a question about to my neurologist. He welcomes the input . But not all docs do. But do your research according to your symptoms. That’s what I do.
Hope this helps

posted 11 days ago
A MyMigraineTeam Member said:

That is that most frustrating thing when you go to the Dr. for help and they tell you, well it looks like you've tried everything, what do you want me to do? And of course your hope sinks and it's time to find a different Dr.

posted 17 days ago
A MyMigraineTeam Member said:

Everything I've tried doesn't help my migraine go away

posted 26 days ago
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