Trying To Find Right Doctor - Status Migrainosus | MyMigraineTeam

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Trying To Find Right Doctor - Status Migrainosus
A MyMigraineTeam Member asked a question 💭

I am on day 152 of a ongoing migraine. All the doctors have said is that it is a status migrainosus. We have done several nerve blocks which have not worked. I continue to do Botox, Aimovig, preventative meds, and abortive meds. Nothing is helping. In the hospital, they did a CT, MRI/MRA/MRV, and a spinal tap. They gave me several different migraine cocktails - none of them worked. They gave me Toradol which I told them I had been given several times and it did not work. They gave me steroids… read more

posted July 5, 2019
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A MyMigraineTeam Member

Have you tried CBD? It is NOT cannabis but it should alleviate some of that I would think.

posted July 5, 2019
A MyMigraineTeam Member

All I can say is : it has helped me to do my own research. Bring what I find that I feel might help and anything I have a question about to my neurologist. He welcomes the input . But not all docs do. But do your research according to your symptoms. That’s what I do.
Hope this helps

posted September 10, 2019
A MyMigraineTeam Member

Yes, it has not been effective with this migraine.

posted July 8, 2019
A MyMigraineTeam Member

Wish you luck and less pain, it sounds like you are going through hell.
It took me a long time to find a doctor that listens, but really doesn't care as much as one would like. I don't feel they understand how bad the pain can be.
Wish you the best.

posted October 18, 2019
A MyMigraineTeam Member

That is that most frustrating thing when you go to the Dr. for help and they tell you, well it looks like you've tried everything, what do you want me to do? And of course your hope sinks and it's time to find a different Dr.

posted September 4, 2019

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