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A MyMigraineTeam Member asked a question 💭
N. Kingstown RI

There is no pain. There is no pain. The problem is vertigo and dizziness.

November 5, 2023
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Types of Migraine and Other Headache Disorders Read Article...

Answer Summary

Members shared their experiences living with vestibular migraines, describing a debilitating combination of constant dizziness, vertigo,... Read more

Members shared their experiences living with vestibular migraines, describing a debilitating combination of constant dizziness, vertigo, balance issues, tinnitus, nausea, fatigue, and vision problems that profoundly impact daily life and work, with many noting the condition is particularly frustrating because attacks are often pain-free yet severely disabling. Several members found relief through Botox injections, vestibular physical therapy exercises, medications like Meclizine and Sumatriptan, and tracking symptoms with apps like Migraine Buddy, while others are still searching for effective treatments after years of trying various options including migraine diets, supplements, and infusions like Vyepti. A recurring theme was the isolating nature of an invisible illness that others struggle to understand, the emotional toll of losing independence and work capacity, and the importance of faith, community support, and persistence in advocating for proper diagnosis and care.

A MyMigraineTeam Member

Yes, I suffer from the vestibular migraines and have for several years. Sometimes I get a headache with them, but I’ve also had just the vertigo and nausea. My doctor calls them silent migraines. Botox has been very effective against these type of migraines, plus, I took this vestibular physical therapy, which helped me learn how to cope with it. It’s hard to understand unless you know what it’s like to walk around with vertigo almost constantly. Please check into the Botox.

March 28, 2025 (edited)
A MyMigraineTeam Member

when the headache goes with it's awful.

March 27, 2025
A MyMigraineTeam Member

I have never heard of it before. I get random dizziness and vertigo and then it goes away. But i also get exhausted everytime.it is very scary.

May 8, 2024
A MyMigraineTeam Member

I have no pain .... just vertio and dizzy

December 3, 2023
A MyMigraineTeam Member

I have vestibular migraine and the migraine pain comes and goes, but the migraines themselves are near constant and so is the lightheadedness/dizziness/vertigo. I also have bouts of nausea, ear ringing/popping, stiff neck & muscles from constantly trying to correct my balance, and fatigue/shaking extremities due to stamina exhaustion.... yeah, I've got it all. Don't worry you're not alone. This diagnosis is debilitating and it's even more frustrating when there aren't any real treatment options around. I was diagnosed with this almost 2 years ago at age 28.... this is not how I pictured my 30s haha

November 5, 2023

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