Good like. Our stories are similar. When I tell people I have vestibular migraines, they look at me like I have three head.

https://www.perplexity.ai/search/best-way-to-de...

Hi Jennifer,
I suffer with vestibular migraines as well as Meniere's. In the beginning it was difficult for the doctors and me to sort out the two. It has been about two years since my first attack which hit abruptly about a month after I had the COVID virus. I was also one year into menopause and a former typical migraine sufferer. In the beginning I had violent vertigo attacks lasting 8-16 hours with vomiting and loss of balance and control over my limbs. I am excited to share my last such attack was this past March 16. I attribute my current state to my knowledgeable Otolaryngologist (also Professor of Otology and Neurotology) who specializes in Meniere's (MD) and is well informed about the potential connections of MD and vestibular migraines- especially in menopausal women. After being in OK medical hands for about 10 months I was referred to her and over the last 12 months she has helped me reclaim most of my life.

I cannot say enough about the 6 months of vestibular therapy she prescribed with a PT who specializes in vestibular disorders. She was amazing! I rebuilt and relearned movement from a vestibular disorder point of view. I would highly recommend it if you could find a PT with the specialized training. For me nortriptyline (25 mg at bedtime) has gradually rebuilt my vestibular systems stamina and took me from 8-12 severe vertigo attacks a month to 1 mild attack a month every couple of months (1 year 10-month mark). I have 2mg valium tablets as a rescue medication. In the beginning they were 5 mg tablets. Some doctors will not prescribe it but my brain needed it in the beginning to get it to relax and "reset". I have to take it rarely now but without it I would have missed my son’s wedding. I continue to use it periodically -sound vibrations are a trigger for me - If it’s a really important event - I take a 2mg 3 hours ahead and it gets me through without spinning. I also carry wax ear plugs everywhere I go and pop them in if we frequent a loud place (kid birthday parties, concert, wedding, the mall, etc...). Fluorescent lights are a trigger – sunglasses and migraine glasses (Avulux) are a must. Lastly (medication wise) we added Nurtec in the last 6 months (PRN) and that has really improved my ability to be more dependable in life. I follow a low sodium, gluten free (Celiacs too), no alcohol or caffeine diet and drink water throughout the day to avoid any possibility of dehydration. We have dimmers on most lights in our home and my life is half as active as it once was. Driving is a trigger, so I rarely drive. It has been very difficult but I'm finally strong enough to return to work PT in September - in a much less demanding position - about a 5 minute drive from my home. I am so genuinely sorry for your struggles and hope something here is useful to you! All the best on your healing journey, vestibular migraine warrior.💗💪🏼

This is pretty much how I live. I have been seeing a neurologist regularly. I’ve had every test, pt, mri’s, known to man. I’ve been given several drugs that didn’t agree with me. Recently, I was put on amitriptyline, which seems to be helping. I have finally accepted it and have learned how to live with it. I now have a cane and walking sticks. My triggers are sunshine, going in large places like Walmart, stress and lack of sleep. I have adhered to a migraine diet. I may have one cup of coffee in the morning. I don’t eat chocolate as much as I love it. I’ve worked really hard to figure out what works. I’m the best I’ve been in a long time but it’s still debilitating and unpredictable. Thankfully I am retired and no longer raising five kids so I can stop when I need to. Good luck to all and I hope you all stay health.

!!!Sounds good. I'm glad you feel better