Migraine

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Has anyone tried the new CGRP treatment or clinical trial?

Has anyone tried the new CGRP treatment or clinical trial?

I've been on the trial for a few months now and it's been a miracle for me. I was having 14+ migraines per month and now I only get 2 or 3. I'm wondering if others have any experiences with this drug?

A MyMigraineTeam Member said:

the estimated cost when they become available is predicted to be very high and many insurance companies are not expected to cover it. have you heard… read more

posted almost 3 years ago

Has anyone gone to Cleveland Clinic's neurologists or to Dr. Winkelman at University hospital?

Has anyone gone to Cleveland Clinic's neurologists or to Dr. Winkelman at University hospital?

I have been under care with Cleveland Clinic for years and have been to their Imatch program. I'm moving on to a new neurologist hoping for another approach to treatment.

A MyMigraineTeam Member said:

That is the only rescue med I have now...works but takes a while.

posted about 2 years ago

Wondering if anyone else is a long term user of imitrex/sumatriptan & have retinal vein occlusion?

Wondering if anyone else is a long term user of imitrex/sumatriptan & have retinal vein occlusion?

I guess most of us have our share of worrying about side effects of the migraine meds we take but some of those side effects are more serious than others. I've kind of come to terms that I'm somewhat spacey, forgetful and "lose" my words for example. It's a trade off for a reduction in pain and frequency of migraines. But earlier this year I was diagnosed with retinal vein occlusion (blood clot in the eye)… read more

A MyMigraineTeam Member said:

Yes, I have seen a eye specialist for a vascular burn out behind my eye. I do not reach for sumatriptan or rizatriptan as a first medication any more.… read more

posted over 1 year ago

Aimovig

Aimovig

My Neuro team wants me to start this . So I singed up for the 3 month trial. I am cleared by the maker and will be receiving it soon. I will keep everyone updated with progress.

A MyMigraineTeam Member said:

My ins covers it and I'm on my 4th or 5th shot and my dr bumped up my dose to 140mg(2 shots each dose) and it worked at first but then I went off my… read more

posted 11 months ago

Emgality

Emgality

What is the approximate cost? Do most insurance companies cover it?

A MyMigraineTeam Member said:

I just learned my sister is on it now for her headaches. She said she's crying a lot more these days. Her doctor didn't warn her about side effects so I… read more

posted about 2 months ago

Has anyone been to the Cleveland Headache Clinic?

Has anyone been to the Cleveland Headache Clinic?

My pain management doc thinks I should try to get myself to the Cleveland Headache Clinic but before I travel that far, can anyone share their experience?

A MyMigraineTeam Member said:

Are you talking about Cleveland Clinic's Imatch program? 3 week program? If so I have done it!

posted over 2 years ago

Topiramate and intelligence?

Topiramate and intelligence?

I've been on Topiramate for a while (300mg daily) and none of the side effects are that bad except I'm worried about my intelligence levels and language disability. It wasn't that bad until maybe the past couple of months and now I feel like my intelligence levels have dropped and my memory has gotten worse. I am not able to write nearly as well as I did in the past and can't really form sentences and my vocabulary is poor. I wanted to know what other people's experiences have been… read more

A MyMigraineTeam Member said:

I lose nouns. Now it's thingy. I have to write more things down rather than recall them. I started on Topomax due to seizures. It was the only med that… read more

posted almost 2 years ago

Has anyone had a Neural Implant?

Has anyone had a Neural Implant?

Has anyone had a Neural Implant??I've heard its pretty effective so far & I want to talk to my doc about it but wondered if anyone's tried it?

A MyMigraineTeam Member said:

I wanted to try but they don't take my insurance and I was told it would cost way to much for me since I am on disability.

posted about 2 years ago
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