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Real members of MyMigraineTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Are There People Out There Suffering From A Chiari Malformation?

Are There People Out There Suffering From A Chiari Malformation?

I recently ran across a post about from a year ago where someone posted they had been diagnosed with it.. are there others out there that gave had experiences with it or what their outcome was after surgery.. would also like to know if anyone has suffered from complications. Unfortunately I have and my surgery was over 15 years ago.. I look forward to any responses team members might have.. thanks in advance!!

A MyMigraineTeam Member said:

Forgive me but I don't think I ever responded to you... The way my surgery was performed isn't done like that anymore. They removed extensive bone from my top 3 vertebrae in my neck which today they only remove bone from the top vertebrae in your neck. That would explain my neck pain and instability I now have.. I refuse to go back to the same hospital that performed it because I feel that they only compounded my original problem. My insurance won't pay for me to seek treatment out of state so I'm stuck

posted 5 months ago
A MyMigraineTeam Member said:

I am not familiar with this surgery. You said you had it 15 years ago, are there advancements or studies you are aware of since you had surgery?

posted 7 months ago
A MyMigraineTeam Member said:

I have never heard of it.😀

posted 7 months ago
A MyMigraineTeam Member said:

I was told it's only diagnosed through an MRI. When they first found mine my brain was herniated 5 mm.. when they did my decompression surgery my brain was herniated a little over an inch.. a horrible experience all around

posted 2 months ago
A MyMigraineTeam Member said:

Hey How Is It Diagnosed and would they have seen it through Mri Previously?

posted 2 months ago
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