Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMigraineTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMigraineTeam Member asked a question 💭
Bay Shore, NY
August 7, 2023
 · 
Reactions

Answer Summary

Members shared widely varied experiences with vision loss during migraines, including colorful auras, blurred vision, tunnel vision, complete... Read more

Members shared widely varied experiences with vision loss during migraines, including colorful auras, blurred vision, tunnel vision, complete blackouts lasting seconds to minutes, and spinning prisms or gray patches that signal an oncoming migraine. Several members described the fear and unpredictability of sudden vision loss, with some needing to stop driving or avoid public spaces, while one member discovered that their fainting spells were a side effect of migraine medication rather than the migraine itself. A recurring theme was the neurological unpredictability of migraines, the importance of staying calm and waiting out these frightening episodes, and the comfort found in knowing others face similar challenges.

A MyMigraineTeam Member

You mean at a level 10.. you need to watch your stress level and drink allot of fluids

August 25, 2023
A MyMigraineTeam Member

Since migraine is a neurological event, we should not be surprised that everyone gets very different reactions to this neurological event. It often seems like it's the end of the world when it happens, but we just need to rest assure that it will eventually pass! At least that is the hope that I hang on to when I'm going through my different types of migraine. Besides losing vision suddenly, which is scary as hell, there are so many other things that can happen to us like being frozen and unable to move, or going into a dead faint. For years I was unable to drive a car because I did not know when I would lose my vision or when I would pass out. Those were some very rough years for me, but thankfully those have passed. I just pray they never return. One thing that I learned however, is that my dead fainting was because of eltryptins or Relpax. At that time I had migraines 24/7 everyday and therefore was taking a large amount of Relpax and other painkillers to try to survive through the migraines, just so I could function and still go to work. Didn't help, I still lost my job! However after I lost my job, the medication stopped because I had no longer had insurance, and that's when I discovered my medication was causing me to pass out. Apparently elatryptins have a side effect that can affect your heart. Unfortunately it has nothing to do with my optical auras, and I still have those, but at least I'm not passing out and hitting my head anymore. Last time I broke my back. So we must hang on to the fact that things could be worse, believe it or not, and these things will pass for us eventually, but we just have to wait it out. That's the hard part! I pray that you all find a way to deal with your optical auras and that at least you have enough time to sit down before you lose your vision completely. I know mine happens so quickly I have no choice but to just stand still. If it happens away from my bedroom, I'm in trouble because I keep all of my medication in my bedroom then I have to try to find my way blindly across the room to where my medication is. I don't ever go anywhere so I don't have to worry about it having out in public very often. God bless you and take care!

August 27, 2023
A MyMigraineTeam Member

Hi april4
I actually lose my vision. It only lasts a few seconds , however everything goes black. Mine was during a 10 migraine.

August 25, 2023
A MyMigraineTeam Member

I have it where I blanks out but only occurs for a few seconds... I have to blink allot and shake my head..

August 19, 2023
A MyMigraineTeam Member

My aura will wipe out my vision in a split second, changing to a bright yellow light, then wham, migraine. Other times it blurs completely, then the migraine comes. My friend loses vision, but no head pain

August 8, 2023

Related Questions

View All
A MyMigraineTeam Member asked a question 💭

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In