Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMigraineTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMigraineTeam Member asked a question 💭
Milwaukee, WI

I have daily headaches mostly in the back of my head. But they do migrate up around once in a while. I have been told I have octipetal neuralgia, yet the shots in the back of my head did not work. I know I have a lot of cervical going's on. Military neck and a lot of arthritis. I just wish that I could find a doctor or a specialist that would take interest in me long enough to say, let's figure this out. That's pretty much why I came here because I need help from the grassroots on up.

October 5
 · 
Reactions
A MyMigraineTeam Member

Yes when they arise my face does tingle and I get an electrical zip through the top of my head. My headaches are always on my right side.

October 8
A MyMigraineTeam Member

Yeah I feel you, after suffering from those migraines for so long one can feel helpless. May you get some relief soon.

October 8
MyMigraineTeam

What a frustrating journey — and you are absolutely not alone in feeling like you're being passed from pillar to post without real answers. That feeling of just wanting someone to *listen* is something so many people with migraines can relate to.

Yes, others do experience daily headaches with facial tingling. A Show Full Answer

What a frustrating journey — and you are absolutely not alone in feeling like you're being passed from pillar to post without real answers. That feeling of just wanting someone to *listen* is something so many people with migraines can relate to.

Yes, others do experience daily headaches with facial tingling. A MyMigraineTeam member shared something very similar: "I can feel my migraine coming on because on the left side of my face, it's tingling on my cheek and in my mouth and lips. It's painful to touch my face on the left side."

Another MyMigraineTeam member described back-of-head pain this way: "I describe it as being hit with a two-by-four across the back of the head." Pain that starts at the back and migrates is also something others have experienced. Facial tingling during migraines can show up in different ways, including:

- Tingling or numbness in the cheeks, lips, or jaw
- Skin that becomes sore or sensitive to touch
- Pain that moves from one area of the face or head to another

When it comes to finding the right specialist, a headache neurologist (sometimes called a headache specialist) is often the best advocate for complex migraine cases. They focus specifically on headache disorders and are more likely to dig deeper.

A few tips that may help when seeing a new specialist:

- Keep a detailed headache diary tracking location, intensity, tingling, and any triggers
- Bring a written summary of all treatments tried (like the injections) and their outcomes
- Be specific about how daily headaches are impacting your quality of life

This kind of documentation can make a real difference in getting a provider to take a thorough, investigative approach to your care.

October 5
A MyMigraineTeam Member

Who diagnosed you? What have you done so far regarding trying to get a diagnosis?

What shots did you get? Have you gotten any brain or neck scans? You can have white matter that reflects migraine pattern. Complex migraine is very difficult. That’s what I have and hemiplegic migraines but so much had to be ruled out before definitive diagnosis

Mine are always on the left with tingling and I get spacey and nauseous. I used to only get tingling and spaciness but no headaches. Now I get it all and I’ve had headaches every day since early September.

You may have already done these but;
General neurologist
Headache neurologist
Epilepsy doctor
Optho Neurologist
Sometimes a good PT will know about this if it’s connected to neck

Get brain and c spine scans. You can also ask for scan of optical nerves.

Try a medication that aborts migraines like Nurtec.

Don’t give up. Relief is somewhere

October 13
A MyMigraineTeam Member

I know what has really helped me is I found a great Chiropractor. Most migraines start in the back of your neck. I was amazed when I went in and told him about my migraines. He felt the back of my neck and very gently manipulated my neck very little pressure. Headache was gone . I did have to go twice a week for awhile but now I go 1 a month. Hope that helps

October 13

Related Questions

View All
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In