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Real members of MyMigraineTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I am having problems with my neurologist

A MyMigraineTeam Member asked a question 💭
Pinellas Park, FL

Can I ask a question? I am seeing a neurologist, and she is not a great listener. I have been to so many offices that I didn't realize I had seen a colleague of hers in 2023, which they did an MRI with and without contrast, and found significant damage to C3 and C4, but never disclosed this to me. I saw her 2 months ago and when I received her summary report of the visit, about half of the information was incorrect. I saw her a couple of days ago, and same thing.I told her I had seen a slight… read more

February 10
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Reactions
A MyMigraineTeam Member

There's nothing more disheartening, frustrating and depressing than feeling that we aren't being heard. I share your experience and changed doctors.

March 15
A MyMigraineTeam Member

I work with a pain management specialist that knows nerves as they can focus on where your migraines are coming from and how to stop and/or manage them with the right combination. Sending a positive vibe, you can do this!

March 14
A MyMigraineTeam Member

Look for another neurologist. One that specializes in migraines. They are few and far between, they are out there. I know insurance is a big issue. I have called my insurance company and asked for help with locating an in network neurologist. It helps to talk to a real person. Good luck!

February 23
MyMigraineTeam

How can you address communication issues with your neurologist when visit summaries are inaccurate?

It's frustrating when your doctor doesn't accurately capture what you're experiencing, especially when documentation shows significant discrepancies like "slight difference" becoming "50% improvement." This kind of Show Full Answer

How can you address communication issues with your neurologist when visit summaries are inaccurate?

It's frustrating when your doctor doesn't accurately capture what you're experiencing, especially when documentation shows significant discrepancies like "slight difference" becoming "50% improvement." This kind of miscommunication can affect your treatment plan.

Here are some steps you might consider:

During Your Appointments:
- Bring written notes about your symptoms, pain levels, and any changes you've noticed
- Ask your neurologist to review the visit summary with you before you leave
- Request clarification when something doesn't match what you said
- Consider bringing someone with you to appointments as a second set of ears

After Your Appointments:
- Contact the office immediately when you receive an inaccurate summary and request corrections
- Document the discrepancies in writing for your records
- Ask for copies of all test results, including that 2023 MRI showing C3 and C4 damage

If Communication Doesn't Improve:
Many MyMigraineTeam members have found that seeing a neurologist who specializes in migraine or headache disorders leads to better satisfaction and communication. These specialists tend to give patients more time to talk and answer questions more thoroughly.

If your current neurologist continues to not listen or document accurately, it may be worth seeking a second opinion or finding a provider who better understands your experience.

February 10
A MyMigraineTeam Member

I am sorry that you have experienced this. Do they not realize they are affecting how our medical records for future dr's that might actually care

March 15

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